International Society

Alzheimer’s Disease International (Medical and Scientific Advisory Committee)

• Consensus Statement on Predictive Testing for Alzheimer Disease

Australian National Health and Medical Research Council (from Brody: The Ethics of Biomedical Research)

• Statement on Human Experimentation and Supplementary Notes (see Supplementary Note 7: Somatic Cell Gene Therapy and Other Forms of Experimental Introduction of DNA and RNA into Human Subjects)

British Committee on the Ethics of Gene Therapy (from Brody: The Ethics of Biomedical Research)

• Summary of Main Conclusions and Recommendations on the Ethics of Gene Therapy (1989)

British Society for Human Genetics

• Comment by the ACC on Rapid Prenatal Detection of Aneuploidy
• Co-ordinated Arrangements for Genetic Testing for Rare Disorders
• The Genetic Testing of Children: Report of a Working Party of the Clinical Genetics Society
• The New NHS Commissioning Specialized Services
• Patenting of Human Gene Sequences and the EU Draft Directive
• Statement on Genetics and Life Insurance
• Statement on Patenting and Clinical Genetics

Canadian College of Medical Geneticists

• Policy Statement Concerning DNA Banking and Molecular Genetic Diagnosis
• Policy Statement of Prenatal Paternity Testing
• Policy Statement on Testing/Screening for Cystic Fibrosis

Council of Europe (from Brody: The Ethics of Biomedical Research)

• Convention for the Protection of Human Rights and Dignity of the Human Being with Regard to the Application of Biology and Medicine: Convention on Human Rights and Biomedicine
• Recommendations Concerning Medical Research on Human Beings
• Recommendations on Genetic Testing and Screening for Health Care Purposes
• Scientific Research and/or Experimentation on Human Gametes, Embryos and Fetuses and Donation of Such Human Material

Council for International Organizations of Medical Sciences (CIOMS)

• The Declaration of Inuyama
• International Ethical Guidelines for Biomedical Research Involving Human Subjects (from Brody: The Ethics of Biomedical Research)

European Medical Research Council (from Brody: The Ethics of Biomedical Research)

• Gene Therapy in Man

European Society of Human Genetics

• Chinese Amend Policy on Sterilization for Genetic Reasons (REFERENCES TWO DOCS NOT AT UW)
• Quality Guidelines and Standards for Genetic Laboratories/Clinics in Prenatal Diagnosis on Fetal Samples Obtained by Invasive Procedures: An Attempt to Establish a Common European Framework for Quality Assessment

German Government (from Brody: The Ethics of Biomedical Research)

• German Embryo Protection Law (1990)

German Society of Human Genetics (Committee for Public Relations and Ethical Issues)

• Statement of the German Society of Human Genetics
• Statement on Genetic Diagnosis in Children and Adolescents
• Statement on Population Screening for Heterozygotes
• Statement on Prenatal Paternity Testing
• Statement on Postnatal Predictive Genetic Diagnosis
• Statement on Prenatal Diagnosis and Termination of Pregnancy
• Statement on the Discovery of the Breast Cancer Gene BRCA1
• Statement on the Prenatal Diagnosis of Sex

Health Departments of the United Kingdom (Gene Therapy Committee)

• Writing Information Leaflets for Patients Participating in Gene Therapy Research

Health Sciences Council of Japan (from Brody: The Ethics of Biomedical Research)

• Guidelines for Gene Therapy Clinical Research

Human Genetics Commission (British Organization)

• Cloning Issues in Reproduction, Science, and Medicine (January 1998)
• Cloning Issues in Reproduction, Science, and Medicine (December 1998)
• The Implications of Genetic Testing for Employment
• The Implications of Genetic Testing for Insurance
• The Implications of Preimplantation Genetic Diagnosis

Human Genome Organization (HUGO)

• HUGO Ethics Committee: Statement on DNA Sampling: Control and Access
• Public Policy Relating to Advances in Genetics
• Statement on Benefit Sharing
• Statement on Patenting of DNA Sequences
• Statement on the Principled Conduct of Genetics Research: HUGO Ethical, Legal, and Social Issues Committee Report to HUGO Council

18^th International Congress of Genetics (Workshop on the Science and Ethics of Eugenics)

• 18^th International Congress of Genetics Statement on Eugenics (Summary)

King’s Fund Forum (London)

• Consensus Statement: Screening for Fetal and Genetic Abnormality: Social and Ethical Issues

Nuffield Council on Bioethics

• Animal-to-Human Transplants: the Ethics of Xenotransplantation (summary)
• Genetically Modified Crops: the Social and Ethical Issues
• Genetic Screening: Ethical Issues (summary)
• Mental Disorders and Genetics: the Ethical Context (summary)
• Human Tissue: Ethical and Legal Issues (summary)

UNESCO (United Nations) International Bioethics Committee

• Article: UNESCO, Genetics, and Human Rights
• Report on Human Gene Therapy
• Report on Genetic Screening and Testing
• Universal Declaration on the Human Genome and Human Rights

World Federation of Neurology (Research Committee Research Group on Huntington’s Chorea, with representatives from the International Huntington Association)

• Ethical Issues Policy Statement on Huntington’s Disease Molecular Genetics Predictive Test
• Guidelines for the Molecular Genetics Predictive Test in Huntington’s Disease

World Health Organization (WHO)

• Proposed International Guidelines on Ethical Issues in Medical Genetics and Genetic Services
• WHO Human Genetics Programme Publications (1990-1997)
• WHO NCD Essential Norms and Standards: Human Genetics

World Medical Association (from Brody: The Ethics of Biomedical Research)

• Declaration on the Human Genome Project
• Statement on Fetal Tissue Transplantation