Disease Info
Education & Teaching
Federal Government
International Society
Journals & Articles
Meetings
Policy
Professional Society
Private & Support
Regional Genetics 
Research & Grants
State Genetics

State Genetics Reports


NOTE: The following documents are not published by the University of Pittsburgh. The University does not expressly endorse any of the views expressed in the reports listed below.

State

Title

Date of Report

Illinois

The Challenges of Human Cloning for Public Policy in Illinois

February 2001

Kentucky

Genetic Testing in Health, Life, and Disability Insurance in Kentucky

January 2000

Michigan

Report of the Michigan Commission on Genetic Privacy and Progress

February 1999

Nebraska

Report of the Nebraska Commission on Human Genetic Technologies Commission

December 1998

New York

Genetic Testing and Screening in the Age of Genomics Medicine

November 2000

Oregon

Assuring Genetic Privacy in Oregon

November 2000

Washington

Integrating Genetic Services in Managed Care Plans: Discussions and Conclusions for Washington State (Send an e-mail to Washington State to request a copy)

February 2001

Washington

Genetic Privacy, Discrimination and Research in Washington State: Findings, Conclusions, and Recommendations of the Washington State Board of Health Genetics Task Force

November 2002

Additional resources:

Organization

Resource

Association of State and Territorial Health Officials (ASTHO)

ASTHO Genomics Toolkit This toolkit suggests strategies for states to integrate genomics into their public health programs and provides links to genomics resources, including policy and planning information.

National Newborn Screening Genetics Resource Center (NNSGRC)

Resources for State Genetics Planning This Web site provides a list of resources for state genetics planning, including links to actual state genetics plans and other Web sites, documents and information.

Partnership for Prevention

Harnessing Genetics to Prevent Disease & Improve Health Partnership for Prevention's guide identifies ways that lawmakers and others can shape genetics policies to advance health.

Individual State Listings

Arizona Department of Health Services
Office of Women's and Children's Health
This web site includes descriptions of the office's newborn screening program and genetic services.

California Department of Health Services
Genetic Disease Branch
Works to protect and improve the health of all Californians.

Georgia Division of Public Health
Genetics Program

Information on the mission and objectives of the Georgia Division of Public Health's Genetics Program.

Hawaii Genetics Program

Iowa Department of Public Health
Division of Family and Community Health
Collects data from a variety of sources in order to observe trends and review statistics associated with birth defects in Iowa.

Kansas Newborn Screening Program
Responsible for screening and follow-up of infants for PKU, galactosemia, hypothyroidism and hemoglobinopathies.

Maryland Department of Health and Mental Hygiene
Office for Hereditary Disorders
"Works to reduce mortality, morbidity and the burdens to individuals and society from genetic disorders and birth defects and to
improve the quality of life for affected persons."

Michigan Hereditary Disorders Program
Helps families and professionals learn about the network of genetic services available in Michigan, and find information about a wide range of topics related to medical genetics.

Nebraska Newborn Screening Program
This site contains information on diseases screened for, how screening is done, how to get screening results, and more.

New Mexico Newborn Screening
Educational resources, references, and internet links for heath care practitioners, patients, and their families.

New York State Department of Health
Wadsworth Center
Investigates the mechanism of action of genes and how this rapidly evolving information base may be applied to the prevention, diagnosis and treatment of disease.

Oregon Newborn Screening Program
The Oregon State Public Health Laboratory's Newborn Screening Section conducts screening of all infants to prevent mental retardation and premature death in children through early detection and treatment of genetic disorders.

Oregon State Genetics Program
This program was initiated in June 2000, to address emerging issues in genetics and public health, including ethical, legal, and social issues.

Texas Department of Health
Genetics Services Division

The Genetics Services Division strives to improve the health of children who have genetic disorders.

Washington State Office of Newborn Screening
Tests every child born in Washington State for certain treatable disorders that may not otherwise be detected before developmental disability or death occurs.

Wisconsin Newborn Screening
Dedicated to promoting and encouraging the sharing of knowledge, communication and resources with health care agencies, families and anyone else interested in NBS for the benefit of babies born in Wisconsin.